Last week we did our day (We left home at 6:00 AM, drove to Boston, and reached our hotel at 8:00 PM.) of tests and appointments at Dana-Farber and the news is all good! The CT scans of my chest and abdomen are unchanged, the brain MRI is unchanged, the EKG was normal, the blood work showed that my additional cholesterol lowering medication is working. High (almost out of control) cholesterol is a medication side effect. Everything else in my blood work remarkably is still always in the normal range. So has ROS1 hopped in his speedster and departed? Nope. But he is currently still out of gas, stalled. Not moving, not growing. My hero, the Lovely Lady Lorlatinib is the real beast, in all the best ways. While she may not be so kind to my body, we’ve learned to get along. And she is strong, keeping her foot on little ROS1. Doing her job.
Me? I’m still playing, taking care of my mind and body, and finding joy in the everyday EVERY day, here in our winter home with Dan, our dachshunds and goats. Filled with gratitude as we near the fourth anniversary of my Stage IV lung cancer diagnosis. Looking forward to having the children, grandchildren, and Dan’s dad all together over the holidays. Making memories.
Thank you for all the prayers you say for me and the positive thoughts you send. I am grateful. Love to all, from our side of the mountain.